So, I was trying to figure out what I should write about today and, suddenly it hit me– I haven’t told you all very much about A. lately! So, if you’ve followed A’s whole saga, this might be interesting to you. If you haven’t? I won’t be the least bit offended if you skip on by and say, “I do not need to read all about this random woman’s kid.”
First of all, for the first time since he got his implanted heart monitor, A. fainted. Boo. It happened at church while he was serving up at the altar and I’m quite certain it scared most of the congregation. Interestingly enough, it didn’t really scare ME all that much, because I remain freakishly calm in times of crisis. (It’s true– I have no idea why, but it’s how I’m wired.)
Anyway, it took a LONG time for my little man to get his color back and be able to sit up– close to 35 minutes– and that was a little disconcerting. I called the hospital and the cardiologist asked me to send a report from his monitor. This is done over a phone line and, let me just tell you, it became a huge comedy of errors. We could NOT get the report to go through and I felt like I was beating my head against a wall. We tried various phone lines and settings. I called the cardiologist back. They had me call the monitor company. They told us it was our phone line’s fault. But, eventually the monitor company did something and it was sent on to Yale.
I just got the call the other day from the electrophysiologist who read the report. The verdict?
They don’t know.
It’s frustrating not to have answers, but this is just how it goes sometimes. We can speculate that perhaps it was his blood pressure again, since he is prone to having those low numbers. The monitor does not specifically measure blood pressure, so we can’t know for sure. It does record heart rate and we learned that, periodically, A’s heart rate drops just below 40. That is, indeed, very low and the doctor pointed out that, while most of those occur while he’s sleeping (and are not really dangerous), should that occur while he’s awake and standing, he’ll most likely hit the floor.
So… the good news is that it doesn’t appear to be a dangerous situation. We don’t really have to DO anything at this point. But, still, I can’t lie to you– I had sort of hoped these episodes were behind us and we’d be able to just move on. As it stands, we’re going to be even more hyper-vigilant about the salt in his diet and make sure that those around him are aware of the issue. I have learned that people often assume it is a blood sugar issue and are quick to offer candy, raisins, etc, when, really, crackers and pretzels are more helpful for him.
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In other news, school continues to go well. They recently did some standardized testing and I can’t say there any real surprises there. It’s a bit of a jolt to see your third grader reading at the 75th% for 10th graders, but, honestly, it changes nothing. I don’t actually understand those parents who freak out jumping through hoops because “my child is advanced and he MUST BE CHALLENGED!!!” A. just makes things more challenging for himself by asking critical questions or doing further research. I see no need to go all crazy about this.
Math is a little different, just in that there aren’t quite as many ways to “delve deep” into, say, single digit multiplication, though he does love finding obscure patterns. So he continues to do math programming through Johns Hopkins University. Actually, his professor is out of Stanford, but whatever.
In order to work through JHU, A. had to take a standardized test called the SCAT last Spring. His scores were good. In fact, they were high enough– I don’t know, some micropercentage: the top .1% of the .05% of the population allowed to take the test or some such craziness– that he will be honored at a special ceremony in June. It’s pretty cool, really, but, as I’ve said all along… it doesn’t really change anything. He’s still just my awesome kiddo, brainiac or not.
So that’s the deal.
A’s doing pretty well. The fainting was a bummer, but he seems fine, really. School is going well. He’s a happy kid!
And, really, that’s all I can ask for.